Care supply for rare diseases: some stake for an organizational innovation within the French healthcare system

This paper deals with the organizational change in the provision of care for rare diseases, and the creation of a new structure: the centre of reference for rare diseases (CRMR). It aims to show that this new organization of care introduces a new authority within the healthcare organizational structure, by referring of the Transaction costs paradigm and its recognition of hybrid forms. It tackles then several conditions this authority has to fulfill in order to complete CRMR missions and awaited results.